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Wednesday, 13 December 2017
National Support for Rheumatology Patients

The following are national organisations. This list is by no means exhaustive and many of those listed have, in turn, links to further useful sites.

Arthritis and Musculoskeletal Alliance (ARMA) Bride House, 18-20 Bride Lane, London EC4Y 8EE Telephone: 020 7842 0910
ARMA is the UK umbrella association which brings together support groups, professional bodies and research organisations in the field of arthritis and other musculoskeletal conditions. Many useful links.

Arthritis Care / Young Arthritis Care 18 Stephenson Way, London NW1 2HD
Telephone: 020 7380 6500, Freephone 0808 800 4050
Information and support, also discussion forum. Links to local group which meets at St Mary at Stoke Church Hall, Stoke Street, Ipswich on 1st Friday of each month at 7.00pm.

Arthritis Research Campaign (ARC) Copeman House, St Mary's Court, St Mary's Gate, Chesterfield, Derbyshire S41 7TQ
Telephone: 0870 850 5000
ARC is a major charity committed to finding a cure for arthritis. It raises funds to promote medical research into the cause, treatment and cure of arthritic conditions: to educate medical students, doctors and allied healthcare professionals about arthritis and to provide information to people affected by arthritis and to the general public.  It produces a wide range of patient leaflets relating to arthritis in its many forms.

Benefits Enquiry Line (BEL) (The Department of Work and Pensions)
Telephone: 0800 882200

Carers UK
Telephone: 0808 808 7777

Disability Rights UK Ground Floor, CAN Mezzanine, 49-51 East Rd, London N1 6AH
Telephone: 020 7250 8181 (Mon-Fri, 10am – 12.30pm and 1.30 – 4pm)

Disablement Information & Advice Line (DIAL UK) St Catherine’s Hospital, Tickhill Road, Doncaster DN4 8QN
Telephone: 01302 310123

Disabled Living Centres Council (DLCC)/Assist UK Redbank House, 4 St Chad's Street, Manchester M8 8QA
Telephone: 0870 770 2866

Disabled Living Foundation 380-384 Harrow Road, London W9 2HU Helpline: 0845 130 9177
Telephone: 020 7289 6111
The Disabled Living Foundation provides free, impartial advice about all types of equipment for older and disabled people, their carers and families. It produces free factsheets on a wide range of topics and has an online tool which allows you to carry out a self-assessment to see what equipment can help you.

Fibromyalgia Association UK PO Box 206, Stourbridge DY9 8YL
Telephone: 0870 752 5118

Myositis Support Group 146 Newtown Road, Woolston, Southampton SO19 9HR
Telephone: 02380 449708
Formally known as D&P Support Group, this charity provides information and practical advice and research into dermatomyositis, polymyositis, juvenile dermatomyositis and inclusion body myositis.

National Ankylosing Spondylitis Society (NASS) PO Box 179, Mayfield, East Sussex TN20 6ZL
Telephone: 01435 873527
NASS is run by people with ankylosing spondylitis and offers advice, support and exercises for fellow sufferers.

National Association for the Relief of Paget’s Disease (NARPD) 323 Manchester Road, Walkden, Worsley, Manchester, M28 3HH
Telephone: 0161 799 4646
This is a national charity which offers support and information to people with Paget's disease.  It also sponsors research into the causes and treatment of this disease.

National Osteoporosis Society Camerton, Bath, BA2 0PJ
Telephone: 0845 130 3076; Helpline 0845 450 0230
This is a useful site for both patients and health professionals. It gives information on osteoporosis, research and educational events, as well as a number of useful links.

National Rheumatoid Arthritis Society (NRAS) Unit B4 Westacott Business Centre, Westacott Way, Littlewick Green, Maidenhead, Berkshire SL6 3RT
Telephone: 01628 823524, Helpline: 0845 458 3969
This is a patient-led national charity focusing specifically on rheumatoid arthritis (RA).  It provides information and support, encourages self-help and facilitates networking amongst people with RA, and also campaigns for better services for patients.

Raynaud’s and Scleroderma Association 112 Crewe Road, Alsager, Cheshire ST7 2JA
Telephone: 01270 872776

Sila: The Sarcoidosis Charity c/o Chest Clinic Office, 2nd Floor Admin Block, King’s College Hospital, London SE5 9RS
Telephone: 07092 861 302

Vasculitis Foundation PO Box 28660, Kansas City, MO 64188-8660 USA
Telephone: 00 1 800 277-9474